Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Saturday, 12 November 2016

Disabled Dreams: Coping with Change

On Tuesday this week I spoke about how we can cope with change and what I've learned as my dreams have been disabled.  These are the notes I wrote, who knows what I actually said, but they seemed to like it.

I have a dream
In the words of Martin Luther King: “I have a dream”.

Actually, I have many, many dreams, aims and plans; ideas are not a problem for me.  The only problem I have is that life has a habit of getting in the way of these dreams; life literally keeps disabling my dreams.  This is frustrating, upsetting and depressing.  I don’t like change which is out of my control.  It brings out the toddler in me and makes me stamp my feet and throw a tantrum.  Once I calm down, and have a chat with my inner adult, there’s no option but to find a way to cope.

Disabled Dreams
There have been four major change points in my life.  I’m going through one right now and it’s this which has made me reflect on my dreams; what it means to be disabled; how we can cope with change as individuals, pioneers and communities and what light may shine through brokenness.  The table below shows what happened at these four times.


Theology of disablement and community; drawing on John Vanier 
John Vanier, founder of the 130 L’Arche communities around the world, has written about disability and theology.  I have been inspired by his reflections and want to share a few.  In “Community and Growth” he says “Growth begins when we start to accept our own weakness” and in “Drawn into the Mystery of Jesus through the Gospel of John” he says “The message of this gospel is simple. It is about being chosen to become a friend of Jesus. It is about mutual presence and learning from each other. To live as Jesus lived and to love as he loved”.

Jesus healed disabilities; the blind man, the woman at the well, the dead, children and even the dreaded tax collectors.  Jesus knew that this was necessary to bring them into community with others and with God.  Jesus even created community when he was himself disabled, on the cross; he showed us how to live when he formed community between John and Mary.

This was a demonstration of the love which rejoices in each and every one of us for who we are; a love which wants us to love ourselves and others despite our brokenness.  Most of us are not healed dramatically in the way that Jesus healed through his ministry, but love and acceptance within communities are a blessing which can heal and allow a true happiness and love between all.


In Japan, broken objects are often repaired with Gold – the art is called Kintsugi.

The flaw is seen as a unique piece of the object’s history and adds to its beauty.
John Vanier wrote “Sharing weakness and difficulties is more nourishing for others than sharing our successes”, it is what God wants of us within communities.

It is what pioneers are called to create; what I feel called to in my disabling, to allow the light to break through the brokenness of life to heal others.  But how do we move beyond our broken dreams?  How do we move beyond our disappointments and failings and disabling?

Disabled Dreams Model
I have a really simple model which we have been exploring in our missional community for coping with change and which I have been testing to the limits in my own life.  It is a model which has God at the centre and prayer surrounding it.  It is about trust and calling, acceptance and sharing.



As we have tried this out we have made some interesting reflections:
- Every person will be disabled at some point
- We all need to grieve different stages of life and ministry
- We’ve never been given permission to lean before, it’s so empowering
- Listening has become a sign of weakness but we need to re-generate its value
- Is every change or disablement therefore something which gets us closer to God? 
- The disabling itself is an opportunity to dream a new dream


Dreaming through Change
I have always seen the disabling times in my life as problems to be solved, as hurdles to be overcome; but life us teaching me that problems and hurdles are everywhere.  It is in these times of weakness that I find God with me and see His call on my life.  It is in these times that God shines light into the brokenness and seals gaps with His Gold.   God does not want me to focus on the disabling of dreams, but on the opportunities to serve Him.  Life is not about merely coping with change but about leaning and trusting God and embracing the call to be His disciples in communities together.


Thursday, 6 October 2016

Each new day #nationalpoetryday #messages #sayitwithapoem



Each new day
When we're out 
Others scowl
Eyes roll about
But I can't see
Those who frown
Or if they stare
If they're not keen
On my wheelchair
And to be honest
I don't care!

It's MY chair
It gets ME out
And in its yellow
It might shout
And not blend in
But why SHOULD I?

Should I hide
Or stay inside
Well, yes
Some say
But I WILL NOT 
Hide away

Not until 
I can't get out
Until I'm stuck
And even then
We'll find a way
Not sure how
But that's for 
Another day

Until then 
I will try
The best I can
To live my life
Coz this is just
How it must be.

It's not the way
That we had planned
But with my chair 
White stick in hand
I'll live my life
The way I hoped
With loved ones near
With as little fear
As we can muster

Though that's often hard
But disabled card
Gives access
To caring ones
So off we go
To try it out
Somewhere new
It might be nowt
Worth writing 
Home about
But what's to lose?

Every day's
A chance to say
Hi world
What you got for me?
What shall I see?
What shall we do?

My vision's just
As huge as ever
Physical limits never
Seem to stop the mind
In it's dreaming
Nor stop God
In His leading
Of my life
In my calling
So I'll just
Keep on following
Don't know where
It is going
But the rowers
Keep on rowing
We've no earthly
Way of knowing
What will come
Or what is going
To happen.

In fact
This could be you
Ten years from now
Or only a few
Months away.
What would YOU say
If YOU could see
What will be
Would you change
Your life
Or will your life 
Change you
What should you 
Do today
What have you 
Delayed

Take the bull
By the horns
Hold on tight
And charge
Don't hold back
Until 
You lack
The choice
And even then
Rejoice
Whilst you have
A voice
Rejoice
In each new day